Silent Partners: Human Subjects and Research Ethics (Paperback)
  • Silent Partners: Human Subjects and Research Ethics (Paperback)
zoom

Silent Partners: Human Subjects and Research Ethics (Paperback)

(author)
£19.99
Paperback 322 Pages / Published: 01/11/2018
  • Coming soon

Awaiting publication

  • This item has been added to your basket
When is a human study ethical? For years, science and society have struggled with this question. Experts have put great effort into developing ethical principles and rules that adequately protect and respect volunteers in studies aimed at improving human health. But experts have missed something important. They have created a research ethics system without the help of people who know what it is like to be a research subject. This is a serious omission. Experienced research subjects can make valuable contributions to research ethics. People who have been in studies have information about the experience that other people can overlook. Their experience as subjects gives them special insights into ethics, too. Experienced subjects also know about problems that can lead people to refuse to join studies, or drop out before studies are complete. Scientists and ethicists often speak of subjects as partners in research, but the reality is quite different. Experienced subjects are rarely appointed to the advisory groups that create guidelines for ethical research, or to the committees that review individual studies to determine whether they meet ethical and regulatory standards. A large body of work describes the perceptions and viewpoints of people who have participated in research. But experts rarely use this material to guide improvements in human subject protection. Although subjects have the power to decide whether to participate in a study, they have little control over anything else that goes on in research. Silent Partners moves research subjects to the forefront. It examines what research participation is like for healthy volunteers and patients. It explains why subjects' voices should influence research ethics. Silent Partners shows how experienced research subjects can become real-not just symbolic-partners in research.

Publisher: Oxford University Press Inc
ISBN: 9780190929183
Number of pages: 322
Dimensions: 210 x 140 mm


MEDIA REVIEWS
Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments."- Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania
Rebecca Dresser has for years been a leading legal and ethical scholar on human subject research. Building on her own experience as a cancer survivor, her book is a powerful and forceful argument to give human subjects themselves a central role in the research, particularly as new kinds of medical research, as with genetics, come to the fore. She makes her case with a sharp eye for nuance and troublesome dilemmas, adding to the power of the book."- Daniel Callahan, President Emeritus, The Hastings Center
Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments." - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania
[P]rovides a thorough review of the ways clinical researchers can ignore the perspectives of research participants, the resulting negative effects, and some of the ways the situation can be improved."- Norman M. Goldfarb is Managing Director of First Clinical Research LLC
Much scholarly writing seems like a bare tree festooned with strings of citations. Dresser's argument flows on its own, and the reader can travel on its currents; the references help guide the flowwithout demanding notice. What this accomplishes is straightforward: it makes the book accessible and potentially interesting to many audiences, from institutional review board (IRB) reading groups to students at many levels to clinicians learning to be investigators. * Nancy M.P King, IRB: Ethics and Human Research, October 2017 *

You may also be interested in...

The Cancer Chronicles
Added to basket
How to Read a Paper
Added to basket
ECG Pocket
Added to basket
£8.99
Paperback
Stem Cells For Dummies
Added to basket
How to Write a Grant Application
Added to basket
Fisch and Spehlmann's EEG Primer
Added to basket
Dermoscopy
Added to basket
£59.99
Paperback
Ebola
Added to basket
£5.99
Paperback
The Cancer Chronicles
Added to basket
Great Medical Discoveries
Added to basket
Old Medical and Dental Instruments
Added to basket
Research Methods in Clinical Psychology
Added to basket
Oxford Handbook of Clinical Examination and Practical Skills
Added to basket
Dmt : the Spririt Molecule
Added to basket
£14.99
Paperback

Reviews

Please sign in to write a review

Your review has been submitted successfully.