Rare Diseases in the Age of Health 2.0 - Communications in Medical and Care Compunetics 4 (Hardback)

by Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon Ibell

Format: Hardback 325 pages

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This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.

Book details

Published
22/10/2013

Publisher
Springer-Verlag Berlin and Heidelberg GmbH & Co. K

ISBN
9783642386428


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